The Cambridge Rare Disease Network is a charity based in Cambridge building a rare disease community throughout Cambridgeshire. They believe in valuing, celebrating and supporting those living with rare and undiagnosed conditions through life’s journey. They offer a range of groups and activities reaching out to all of those involved in rare disease. They are seeking new members for it’s fledgling children’s activity group – UNIQUE FEET a children’s activity group for fun and friendship. Children up to 16 years are welcome to join Unique Feet for regular activities with other children with rare and undiagnosed conditions in a safe and welcoming space.
The group takes part in a weekly activity such as yoga, dance, horse-riding and cycling – activities vary termly but children are encouraged to attend all sessions to get the best from being part of the team. The children and their families enjoy a day long activity or trip each week of the school holidays. They strive to meet all children’s physical and learning needs, in discussion with parents and carers, to enable them to take part. Parents and carers also have a valued opportunity to chat and share experiences with each other when attending the group sessions with their children.
The current activity until March is YOGA details are as follows
Dates and Times
Thu 1 Feb 6-7pm
Tue 6 Feb 6.15 -7.15pm
(No class during half term but another activity will be offered – we’ll discuss ideas and suitable dates together)
Tue 20 Feb 6.15 -7.15pm
Thu 1 March 6 – 7pm
Tue 6 March 6.15 -7.15pm
Thu 15 March 6 – 7pm
Tues 20 March – Instructor is not available but we’ll arrange another activity TBC
Thu 29 March 6 – 7pm
St Andrew’s Hall, St Andrew’s Road, Chesterton, Cambridge, CB4 1DH
Tel. 01223 306150
They have the lovely annex room which in on the ground floor and fully accessible. It has a disabled toilet and facilities for making a cuppa or a cold drink. Depending on numbers for each session it is likely that parents can take part too if you’d like or you can take time out for a chat with other parents. We have access to a comfy room too. There is parking at the front, a disabled parking space and some on street parking too.
There is no charge for these sessions. Bring a yoga mat if you have/can borrow one.
The group is co-ordinated by previous SENCO and advisory teacher, Jo Balfour. Get in touch for more details
Activities and Events Director – Jo Balfour E: firstname.lastname@example.org